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Ama Donkor

Ama DONKOR,
healthcare specialist,
Division of Behavioral and Social Research (DBSR)
.

We’re excited to be back on the blog to share our latest data resource with the research community! Earlier we wrote about how IMPACT Collaboration supports embedded pragmatic clinical trials (ePCT) and demonstration projects to improve the well-being of people living with dementia and those caring for them.

In response to the coronavirus pandemic, IMPACT Collaboratory researchers have developed data sharing and reporting systems to track the effects of COVID-19 vaccines given to frail older people, including people living with dementia. This effort to strengthen future collaborative and innovative ePCT has since evolved into a new resource full of research opportunities for NIA-funded scientists: Long Term Care Data Cooperative (LTC).

Clinical Care Evaluation Extension

Through its LTC Data Cooperative, NIA is committed to improving the quality of care in skilled nursing facilities by building one of the largest collections of data ever collected from US nursing homes and their residents. The main goal – through observational studies or pragmatic randomized trials – is to test the impact of treatment and other interventions aimed at improving the lives of residents of nursing homes.

Data Cooperative researchers use electronic medical records (EMR) protected by the privacy of nursing home residents, which can also be linked to Medicare claims data. The Data Cooperative’s extensive database helps researchers obtain real evidence for the effectiveness of various treatments and care for older people, people with disabilities, and people living with dementia in nursing homes.

For nursing home residents who are Medicare recipients, this easily accessible EMR data will be linked to both historical and future Medicare claims data from all other health care providers. This dataset can help pragmatic researchers reduce data collection, complex file aggregation, and related costs, especially for data such as vital signs, doctor’s prescriptions, and medications.

In addition, the Data Cooperative supports public health oversight by streamlining feedback reports for qualified healthcare providers to help coordinate care. It also facilitates randomized controlled trials in nursing homes willing to participate in treatment efficacy studies, facilitating the collection of consistent outcome data from EMR and long-term follow-up data from Medicare data.

Researchers planning a trial may consider asking nursing home administrators they work with to join the Data Cooperative if they haven’t already. Joining nursing homes is free.

Connect to help us increase IMPACT

We need your help to expand the use of LTC Data Cooperative! To get started visit LTC Data Cooperative website or email [email protected] IMPACT Joint website provides additional information about many other resources and interactions, including pilot funding opportunities, grand rounds/podcasts, knowledge repositoriesand more.

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